Wednesday, April 29, 2009

Goodbye to the muffs, at least for one day

Well, Mr. Greyson had another good day today. He was actually taken off the jet ventilator today and placed on the more conventional vent. Mom and I were so excited to see this today! This is simply a trial run but we are still cheering. So for now he is ear muff free. Funny enough, he figured out how to pull those little ear muffs right off. I’d look in his incubator and see an ear muff on his foot or one on his face! I think he was trying to tell us he was ready for a break. (I explained in an earlier post that Greyson needed the ear muffs because the jet ventilator is much louder and the machine is very close to him inside his incubator.

Grey’s PICC line was removed yesterday morning because the culture was still showing a positive to the infection. He will continue to be retested and the PICC line should be replaced Friday at another site. We are hoping all goes well with this.

Mom and I attended a PRO (Parents Reaching Out) meeting today, which was very beneficial. This group provides peer counseling to families with infants in the Neonatal Intensive Care Unit. We got an hour with a very well known neonatologist at Vanderbilt. I feel like I may have consumed the full hour with Greyson questions :) Interesting enough, the Dr. explained that he has been doing this line of medicine for 30 years and finds HELLP syndrome to be one of the most frustrating disorders, frustrating because the cause is still unknown after years of research and study. He specifically asked me in the meeting if I intended on having another baby. He said it is very hard to watch a mother try over and over again and have as many as four NICU experiences- one for each child. Moreover, he was asking me to precede with much caution in future pregnancy considerations. Unfortunately, women with a history of HELLP syndrome are considered at increased risk for complications in future pregnancies. So Greyson will be the one and only miracle for Matthew and me, unless God has another plan.

8 comments:

Vicki said...

Kiley, he looks great! I loved it when our baby gained some ozs started to look like a mini baby. One day we came in and the night nurses had washed his hair, and it looked like duck down. I was on cloud nine that day, to have "real baby" hair. Celebrate everything! :)

christinalepoutre said...

he looks beefier! :)

Emily said...

Im pretty for sure that i saw a double chin??

Kara said...

I said no more babies after my HELLP experience and 3 years later, my little Grace was born. I developed toxemia at 32 weeks with her, but luckily pregnancy was a much better experience for me the 2nd time (except the mag sulfate and trips to the hospital)! I swore if was was able to have the second baby, I'd go with the name Grace or Grayson to remember what got me through it. So I ended up getting my Gracie-girl and now I get to watch your miracle baby Greyson grow!

stephl119 said...

He looks so much bigger! And precious as always. Happy 1 month birthday sweet Greyson!!

bfly_82 said...

Kiley, He looks so good! I think he is starting to get a little personality :) I know he still has a road ahead but it looks like lots of prayers have been answered already. He is truely a miracle! He will definitely be a MOMMY'S BOY!

dana said...

My sister had HELLP twice! It is such a scary ordeal. She delivered both her babies at 28wks with her girl weighing 1lb 7oz and her little boy was 1lb 12oz. She is now pregnant again with her third and with bedrest she has made it to 35weeks. I know the NICU experience is no fun. I also delivered my little boy at 28weeks as well. If you ever need someone to talk to please let me know. My family has experienced it all when it comes to the NICU. I will be praying for Greyson and that he gets stronger everyday!

mcbridea said...

I am glad things have been going better! Greyson looks so very sweet and I cannot wait to meet him! We are thinking about you guys everyday... Miss you :)

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